Welcome to my Blog :)

Thank you for your kindness, compassion, and most importantly your support throughout this difficult journey. Your physical presence wasn't necessarily what we needed; your love, strength and caring was.

IN MOM'S MEMORY, to those of you who sponsored me for the Investor's Group Memory Walk...I walked 5kms on 18 June 2011 in the pouring rain, and cold weather. We were soaked and covered in mud. I raised $1176 to help THEM find a cure BEFORE WE REACH OUR GOLDEN YEARS. To find out if we were fortunate enough to reach our goal this year, go to:

www.alzheimer.ab.ca to check out the numbers.

Congratulations to all who participated in support of those who can no longer do so themselves. This disease could affect all of us at one point of our lives or another. The next time someone approaches you, wondering if you'll sponsor them, consider saying yes because it could be YOU or someone you love facing this devastating disease. Don't wait until it's too late.

Saturday, April 30, 2011

TWO Posts In One

My apologies for not posting yesterday.  Getting onto the computer is a bit challenging when I don't have my own :(  Oh well, I'm here now.

Let's see...yesterday was a pretty good day for Mom.  She was awake, alert and chattering again while I was there.  I stayed for nearly two hours and held her attention for pretty much the whole time.  She's still determined to fight and wants to get well.  As I said in an earlier post, I ask her almost daily and her response is always the same.  The only thing I can see right now that might give her any trouble is her ability to articulate her words.  Regrettably, it doesn't appear right now that she's doing very well in that aspect.  One can only hope that will change as things continue to progress.  She eats better at breakfast and lunch than she does at supper time...but then she always has.  She'd prefer to have a sandwich or bagel at supper time and a large lunch.  Sadly, that's not the way the hospital does it...lol  Meh, she'll adapt eventually.

Oh, one thing she did yesterday that she hasn't done in a long time is play our "Love You" game.  I have always said, "I Love You" and she always says, "I love you, too."  Then I'll reply, "I love you more!!!"  And she'll reply, "No, I love YOU more..."  And this can go on and on...while we giggle.  Up until yesterday, the I love you game would end at my saying I love you more.  Yesterday when I left, she replied, "No, I love YOU more!"  What a pleasant surprise that was to hear!!!  I'd have to say that was definitely a step in the right direction that she's remembering our little game.  It might be a silly, little game, but it's something that I've noticed that's coming back to her.  :)

Today was another relatively good day, although she did begin to get a headache again.  Seems she gets lots of those - but then again, she always did get a lot of them.  We managed to get some acetaminophen and she was okay, for a while.  And, she was ready for a nap!  That's okay though, I was able to get nearly two hours of visiting time in with her (again) before she wanted to nap.  The visits are getting longer and her periods between nap-times are getting further apart.  Hopefully, that's also a good sign.

Otherwise, I really don't have too much to say...but then again, I guess I've said enough...yeah, yeah...for those of you who know me well, you`d be inclined to think I`m full of hot air anyway...hahahaha

Have a great night...more tomorrow.  Thanks for stopping by... xoxo

Thursday, April 28, 2011

Sleeping in BED This Time :(

Well, I'm not sure WHY, but the little Mama is sooooo tired of late!  She was actually sleeping in her bed tonight when I arrived!!!  That's just not like her, so she must have been totally exhausted!  She did wake up a couple of times - once when we HAD to wake her to take her meds, and once an hour and a half after I arrived when I bent over to kiss her good-bye :(

Oh well, I suppose there are going to be days like this.  I can't expect miracles EVERY day...perhaps tomorrow will be a better day.  Her Patient Watch Staff said she was awake, alert and chattering up a storm earlier today.  I guess I'm just catching her after she's had a long and busy day and she's just plain tired.  Tomorrow... :o}

Sorry I don't have more to tell you...until I post again...

Thanks for stopping by,
Me

Wednesday, April 27, 2011

A Sly One Tonight ;o)

Tonight's visit with Mom was fun!  She WAS napping when I first arrived - and she'd just fallen asleep!  I wasn't about to have her sleep thru my whole visit again so I started bugging her until she told me I was driving her crazy!!!  LOL  She finally opened one eye and watched me with a Cheshire Cat grin...and of course, she was giggling.  Needless to say, that just made me want to bug her even more.

Eventually, I guess I drove her crazy enough that she decided to sit up and visit with me.  So, for an hour and a bit, she and I chatted...well, I did most of the chatting and she did most of the listening and/or answering.  For some reason, tonight her words were a bit jumbled...bugger!!!  Oh well, I'm not going to lose any sleep over it. 

She's looking better, feeling better - except for being tired so often - and she's now wanting to get up more on her own and walk around by herself.  They're still not wanting her to do that, though, as she's not too steady on her feet after sitting for so long.  Perhaps with a couple more weeks of thyroid treatment under her belt, she just may be able to.  Who knows for sure.  The one thing I do know is that she IS getting better, slowly but surely.  There's just such a long road ahead of her still...and when I ask her how she's feeling, she says good but tired.  When I ask her if she's happy, she says yes.  If I ask her if she wants to keep fighting, she says yes, I'm not ready to go yet.  When we talk about what happened to her, I ask her if she understands and she says yes.  We discuss it in detail and I tell her how sick she was and how she still has a long road of treatment and "fighting" ahead of her and she says she's okay with that.  I do ask her often because I need to know if this is what she wants.  As long as she continues to be positive about her future, I'm going to continue to be positive about her future.  As long as she wants to fight to be healthy physically and mentally, I will help her fight.

In the meantime, I'll laugh with her, make her giggle, keep driving her crazy while she's trying to nap and be the face she sees every day.  We'll go for more walks as she continues to get stronger; and together we'll dance again and we'll sing again.  It's what she loves to do and I'll be there with her as she fights to regain those small abilities.

Until tomorrow, thanks for stopping by...

Tuesday, April 26, 2011

A Sleepyhead :oO

Yesterday, Mom slept thru most of my visit again.  However, I was able to rouse her long enough to eat for me.  She has her awake times and her "nap" times.  I guess I just hit the hospital during her nap time.  UGH!

The one thing that I was kind of disappointed about is that she was sleeping when I got there and her lunch was getting cold!  Needless to say, by the time I woke her long enough to eat, she was not in the mood to eat COLD food...so I was on a quest to find a microwave...they don't have one at her temporary location.  Now, that was a challenge!  I finally found one but by the time I arrived back in Mom's room, she was sleeping again...oh well, I woke her again and she ate quite a bit!  Then she had her apple juice (a very small one), her milk (not at the same time) and a huge drink of water.  It's quite hot in the hospital during the day with the weather now improving...so I think the patients start to become rather parched...I know I am while I'm there.

My apologies for not posting yesterday...by the time I got home, I had to get busy preparing supper and when I sat down to post my blog, I was heartbroken to discover I have a virus on my laptop... :o(  So, it's been sent to the laptop doctor for a medical...lol  With any luck, I'll have it back soon.  In the meantime, I have to share the main computer with Dave...so I might not get on nearly as often as I like.  I'll try my best to post as often as possible.

Thanks so much for stopping by...
xo

Sunday, April 24, 2011

Another Good Day

Hi Everyone,

Well, Mom had another good day.  Sometimes I have to wonder if she's just having good days when I take Tim's up...hahahaha  All kidding aside, she was awake and alert when I arrived and was very happy to see me.  We chatted and had lots of giggles today.

The lady in the bed beside Mom's was telling me that Mom gets lots of wonderful care there and that all of the nurses really seem to be good to her.  I like to hear things like that.

I stayed for nearly two hours and for the entire time I was there, Mom didn't nap at all...at least not until I was nearly ready to leave...then it was nap time.  So, I guess that was my time to go, anyway :)

Things are still progressing well...slowly, but well all the same.  I'm very pleased with Mom's progress and with any luck, she'll continue to make positive progress through the summer.  Sometimes it seems like such a long time away but if it brings Mom back to where she once was - or even close to that, I'm just fine with waiting.  I've come to understand that I have to be patient...

Thanks for stopping by...I'll have more for you tomorrow...

Love you all,
ME

Saturday, April 23, 2011

Not Much of An Eventful Day

Hi Everyone :)

Today wasn't much of an eventful day.  I arrived earlier than normal at the hospital today, only to find Mom snoozing.  Apparently, she didn't sleep very well last night...oh well, neither did I.  Needless to say, we didn't chat very much.  She was a pretty tired little girl. 

Dr. Tran stopped by while I was there and although she was disappointed Mom was sleeping, she did say that she's happy with the progress Mom's making.  She's happy with how well Mom's responding to the thyroid meds and while we were forewarned the end result would take 3-4 months, she was also seeing minor improvements.  Mom still has many moments where she has some confusion but she responds well to questions and does answer some questions with cognisant, well formulated sentences; albeit not terribly long sentences...10 words or so.  I think that's a great start!

Anyway, that's about it for now.  Not much more I can fill you in on, so I'll not babble on about nothing...LOL  Happy Easter to you all...and of course, thanks for stopping by.

Don't forget to consider sponsoring me for the Memory Walk for Alzheimer's.  I'll be walking 5kms on 18 June.  There's just not enough funding for Alzheimer's research and every bit of support helps.

I love you all,
Me

Friday, April 22, 2011

A Good Day ;)

Today was another good day for Mom.  She was sitting up watching TV when I arrived this afternoon.  She enjoyed some apple juice with me and had a couple of cookies.  Her disposition has changed and she's still happy and smiling.  It's good to see her like that again.  I'm thinking with time, she should hopefully continue to improve.

Mom & I watched a couple of episodes of Criminal Minds while I was there and discussed how foolish some criminals are...LOL  It was great to see her critique some things...hahahaha

Anyway, thanks for stopping by...

Love,
Me

Thursday, April 21, 2011

A Post Script for Today :oD

Today was a pretty good day for Mom.  She was awake, alert and very talkative today.  She certainly enjoyed her Cheezies and apple juice.  In fact, I think if I'd taken her up three bags of Cheezies, she'd have eaten them all in one sitting!  LOL  I think she missed her Cheezies!

I asked her if she'd like to start watching some TV and she replied, "That would be nice."  So I asked her what kind of TV she'd like to watch...Jeopardy, Wheel of Fortune, Criminal Minds, CSI?  She said, "Yup, all of them!!!"  LOL  So, she's got TV for a week...we'll see how that goes.  At least she's got something to do other than sit in her Geri-chair and do nothing.  That's got to be pretty boring.

Anyway, we visited for quite a while but then she got tired and wanted to have a snooze before her supper came, so I bid her goodnight and came home.  I'll see her again tomorrow.  As much as I would like to "have a life," my life is being Mom's care-partner (that's the new word the Alzheimer's Society has given to those who share the disease and care giving responsibilities...it gives more dignity and respect to those with the disease...and I like it).

On a footnote...I received a newsletter from the Alzheimer's Society of Alberta and Northwest Territories today.  In it was a pamphlet for the Investors Group Memory Walk.  I'm thinking of doing it.  If I do, I'm hoping you'll all be kind enough to support me in my effort by sponsoring me...I would be so very grateful.  This is the most important cause to me right now.  I support both the Canadian Cancer Society and the Alzheimer's Society.  Anyway, I'll let you know... :)

Thanks for stopping by...

Love,
ME

A Bit of Good News :)

I just spoke with Mom's doctor and have been advised that she's responding well to the thyroid meds.  Her thyroid numbers were at 43 when she was admitted (not the "over 25" like I'd originally thought).  She's currently sitting at 24.9 as of 17 April!  That's such a huge change. 

I hope she continues to respond to the treatment.  She still has quite a bit to go, but she's definitely heading in the right direction.

More later...thanks for stopping by :)

Wednesday, April 20, 2011

A Post Script for Today :)

Wow, what a difference a couple of days makes.  I wasn't able to get up to see mom last night, so as I mentioned earlier, Jason was up to see her.  When I went up tonight she was up and standing outside her room door.  When her security staff saw me, they pointed me out to her, she turned around and saw me and started to cry, saying, "I missed you, I missed you!!!" 

We had a wonderful visit tonight.  She was chatty, smiling, laughing, making more sense than she has in a long time.  It was good to see.  I guess that's two days in a row, now.  Jason said she was pretty much the same way last night.  I guess she ate all of her supper tonight, she and I had a tea together, I convinced her she's far more attractive with her teeth in her mouth (although I'm thinking they're a mite uncomfortable because she's lost quite a bit of weight - yes, even in her mouth), and she was more alert tonight than I've seen her in a while. 

Hmmm, I'm wondering if it's a small improvement...perhaps she's finally responding to the thyroid treatment.  The one thing I won't do is get my hopes up too much, yet.  She's still got quite a long road ahead of her, considering her INR was 10 when she was admitted; her thyroid level was over 25 (the normal person's is .5 to 0.5) and she was pretty messed up.  Her INR is normal and stable now (and should remain somewhere between 2.5 and 3.5 - yours and mine is, on average 1)...thankfully, her fluid retention appears to be under control...finally; and perhaps this is the VERY tiny victory I'll take for today!

Anyway, I will bid you adieu for today and will fill you in when I see Mom again tomorrow...thanks again for stopping by...
Love,
Me

Another Day, Some Improvement

Seems like Mom was alert, aware and GRUMPY last night :)

I wasn't able to get up to see her but Jason was there.  He said he had a good visit with her except she was a grump...lol  I suppose we're all allowed a bad day or two.  Heck, I've had several bad days in my lifetime...although I would challenge any of you to agree with me...hahahahaha

I had a chat with the nurse earlier and she was saying she visited with mom earlier today and that, even though she couldn't understand what mom was referring to, Mom was laughing and smiling and making "funnies!"  Yup, that's Mom.  I'm glad to know that the grumpiness is gone, at least for this morning.  I wonder what she has planned for me tonight.  I guess I'll find out later... ;)

I'll post more later on this evening or tomorrow...thanks for stopping by!

Love,
Me

P.S.  Happy 94th Birth Anniversary, Nana <3  I miss you

Monday, April 18, 2011

Another Day, Another Visit ;)

Today was a somewhat good day :)
Mom was awake and sort of alert when Jason and I arrived to see her.  She was "chatty" and full of mischief of sorts...she had her typical potty mouth when something wasn't to her liking, though!  Just like Mom!  She ate a wee bit but when she decided she didn't want anymore, she made it known!  Then it was nap time and time for us to leave...

I spoke with her medical people today and was told that her thyroid level is still significantly high.  The "average" level is around .5 to 5.0 and Mom's is still at 24.3!!!  This is what's causing her confusion, her fatigue, her lack of appetite (to a degree), her feeling of being cold all the time (aside from the cumadin), and of course, the exacerbated levels of dementia.

Well, only time will tell...and the doctor told us there will be no extreme difference for 3-4 months.  I'm just so impatient!

Thanks for stopping by :)
Love, Me

Sunday, April 17, 2011

Not Much to Tell :o\

Today was a pretty uneventful day...Mom slept thru my visit, so I have nothing really to report.  Although, the caregiver for the lady in the bed next to Mom said she was alert, laughing, chatting up a storm and walking around this morning.  Boy, did I miss all the adventure :(  Oh well, there's always tomorrow!!!

By the time I got there today, she'd finished her lunch - well, what she was going to eat, anyway!  They brought her up macaroni and cheese...and we're not talkin' the real deal here...you know, good ol' Kraft Dinner!  It was soggy macaroni topped with melted cheddar cheese - YUCK!  And peas as a side dish.  What a lousy combo!  No wonder people lose weight in the hospital.  I wouldn't eat that crap either!  LOL

To those of you who pray for her, thank you.  Your love and prayers mean the world to us.  We can only hope that with each passing day, her mental health returns to where the doctor hopes it will.  While I'm guardedly optimistic, I can't help but give up hope some days.  I draw my strength from all of you but there are times where all I want to do is give up.

Anyway, without boring you any more, I'll take my leave of you until tomorrow. 

I love you all...
Me

Saturday, April 16, 2011

Same Day, Another Visit

Well, I find myself thinking the same thing I did yesterday after I left Mom.  Not much has changed, really.  She pretty much sat in the Geri-chair throughout my visit!  Although, she was really happy to see me...could be because I took Tim's Green Tea and a box of Timbits up for her!  She ate quite a few of the Timbits and was so happy with the tea.

She's not eating very well right now and has to be encouraged to eat.  It could be a side effect of having been reintroduced to her antidementia medication.  Sadly, it takes about two weeks to really take effect.  On 30 March, it "somehow fell off her chart" and she wasn't receiving any for eight days.  This was picked up when her doctor called me and asked me why she wasn't being prescribed any anti-dementia medication.  I told her she was, and had been for close to five years.  Needless to say, the doc flipped back a few pages and discovered the "mistake."  She immediately put Mom back on her Reminyl but as I said, it takes about two weeks to really see any effects.

Dr. Tran also increased Mom's Synthroid from 100 mcg/mg to 150...which is a pretty big jump.  She wants to see her thyroid respond to treatment.  So, we wait.  The wait will be a long one as the lack of thyroid activity Mom had when she arrived at the hospital a month ago was devastating to her physical and mental health.  Right now, mom's physical health has improved about 40%, however, her mental health is quite a bit behind that.  The doctor says that's to be expected.  I on the other hand, expect the improvement to be NOW.  I'm one of those people who seems to think medication should work immediately; it doesn't work that way!!!  Whoda thunk it!  It bothers me that my expectations are so high because when Mom has a bad day or two, I have a hard time seeing her in the condition she's in and continually second guess myself.  What I have to do is learn to celebrate the small victories...one day at a time.

Until tomorrow, let's all hope for a small victory.

Thanks for stopping by...love,
Me

A Visit to Mom

Hey everyone, today is my first BLOG, so I hope you'll be patient while I mess this up LOL :)
Yesterday, mom was somewhat confused but every now and then, she made perfect sense.  Otherwise, not much has changed one way or another.  She was up walking around, smiling, dragging me everywhere and just trying to get better.  It's been three weeks since they made the diagnosis to get things on the go with her thyroid.  The doctor said three to four months before we see any major improvement.  That's a long time for anyone to wait...we can only hope for the best...sure hope she improves.
More tomorrow :)  Or later today!!!